Focus on Caregivers – Helen Talks About the Multiple Roles Caregivers Fill

March 3, 2017

Helen Hovdesven shares her story of her late husband, Arne, who had Alzheimer’s disease. She currently serves as co-chair (with Sylvia Mackey) of the Patient and Family Council of the Johns Hopkins Memory and Alzheimer's Treatment Center.

Program Notes:
0:05 Arne decided to donate his brain
1:02 You are doing so much for us
2:01 I never cease to be amazed at the men I meet who are caregivers
3:04 Even if it's an obligation it still takes courage
4:02 If you have cancer you have hospice but dementia doesn't
5:03 Who knows what the precipitating event will be?
6:05 Until they focus on caregivers it won't help
7:06 Make sure you have support
8:06 Don't look too hard at what might go wrong
9:05 You need an advocate as a patient
10:23 End